Depression-in-Pregnancy.org.uk

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What causes Ante-Natal Depression?
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Aboutus

About Depression-in-Pregnancy.org.uk

History of this website

 

Frequently Asked Questions

 

My Story

 

Helen’s Story

 

Depression-in-Pregnancy.org.uk Forum

 

My campaign to raise awareness of Ante-Natal Depression

 

Some interesting information about Depression and Anxiety in ‘general’

 

 

 

 

The history of this website, by Delphi Ellis – website founder

Until I was pregnant with my son, I had never suffered from depression before nor have I suffered from it since.  During my pregnancy, I experienced tremendous lows which left me crying inconsolably for hours at a time.  I would wash my hands repeatedly fearing that if I didn’t something awful might happen to the baby. All I could think about was my pregnancy and became increasingly paranoid, anxious and upset. 

 

When I was suffering from ante-natal depression, there was very little information available and I decided once I had the baby that I was going to share what I had been through.  I found the experience of setting up this website hugely cathartic and I have had a tremendous response from women and pregnant mums who have been relieved to discover that there is a 'name' for what it is they are experiencing.  If you’d like to read more about my story of depression in pregnancy, you can click here or for a .pdf version click here.

 

Ante – Natal Depression (Depression during Pregnancy) affects approximately one in ten women in the UK.  There is little information on the subject, it is not the same as post-natal depression and more needs to be done to raise awareness of it.  This is why I set up this website in 2004 following my own personal experience and I continue to support women who contact me.  For the purposes of this website, the term ‘depression’ is used throughout although you may recognise your symptoms as anxiety.  

 

I have featured in Pregnancy and Birth magazine and other pregnancy websites, detailing my experience to keep Ante-Natal depression in the public eye.  I have worked with Prima Baby to meet with the Department of Health and I have approached the National Institute for Clinical Excellence (NICE) to encourage more research, funding and the production of guidelines regarding the care of pregnant mums who may be suffering from Ante-Natal Depression.  Clinical Guidance is underway and the expected date of publication is January 2007.  Click here to view the NICE website for this topic.   I have also worked with Tommy’s (the baby charity) as part of Pregnancy Health Month and have featured in the Daily Telegraph, Daily Express and The Guardian talking about my experience.  For latest news from this website click here

 

One of the hardest things I have learned about depression in general is that there isn't an envelope you can open with all the answers in it. If people suffering from depression could simply cheer up, then they would. They do not want to feel the way they do - it is an illness.  Depression is a unique, personal exploration and journey for those affected by it.


Because Ante-Natal depression is still not widely recognised many pregnant mums are still told to 'pull their socks up', ‘go and have a cup of tea’ or 'get on with it'.   The reasons for creating this website include educating people that ante natal depression does exist and to provide information and support to anyone who feels they need it.  This website contains information for pregnant women, their friends and family and anyone wishing to know more about ante-natal depression.  Pages include symptoms, possible causes of ante-natal depression, how family and friends can help and how to contact me.  The great news is that I feel fine now and so if I can help one person, then I have achieved my aim.

 

Depression-in-Pregnancy.org.uk receives no funding for this project saved for that donated and all proceeds go back in to the project to further its aims.

 

Depression in Pregnancy Forum

I am delighted to announce the launch of the Depression-in-Pregnancy.org.uk online community forum for people affected by Ante-Natal depression (depression during pregnancy).  

 

Since the website was launched in 2004, there have been over 25,000 hits to the Depression in Pregnancy website and I am contacted regularly by pregnant women requesting information and support.  The forum offers information and support for pregnant women, their family & friends and women who have experienced ante-natal depression in the past.  There are useful links as well as space to talk for women to share their feelings with others, whether their pregnancy is planned or unplanned.  Other areas include stress management, nutrition and alternative therapies.  I am delighted to have Esther Marchant as our consultant Homeopath. 

 

You can visit the forum at:

www.Depression-in-Pregnancy.org.uk/forum

 

The forum marks a new stage in raising awareness and providing support for ante-natal depression and I’m sure that you will share my enthusiasm for its arrival.

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Frequently Asked Questions      This section is for information only.  If you are in any doubt about your health & wellbeing please consult a suitable medical professional.

Why did you set up Depression-in-Pregnancy.org.uk?

I set up this website primarily to share my experience of Ante-Natal depression (depression during pregnancy) with the view that if I helped one person then I’ve made a difference.  Since then I’ve supported many women who have contacted me, have worked hard to raise awareness of this subject and am now in the process of setting up a support group locally with the help of the midwife that looked after me during my third pregnancy.  I have received no funding from the NHS, but have the support of my local Midwifery Department whose staff donate their time voluntarily and raise awareness of this illness.

 

Have you suffered from depression before, or since?

No.  I have only ever experienced ‘real’ depression during my third pregnancy.  That doesn't mean I haven't had bad days, but then who doesn't…lack of sleep, late nights and early mornings are bound to take their toll on a person's character from time to time! But fortunately I have a wonderful family to support me. 

 

I have a history of depression.  Does this mean I will have ante-natal or post natal depression?

I can not say.  Everyone is different and you are unique.  I am aware that some women whether they have a history of depression or not, can have ante-natal depression and go on to have post-natal depression.  Here is a link to the research which may help and have a chat with your GP about your concerns.

 

I’ve only ever heard of post-natal depression.  How is ante-natal depression different?

Many people confuse ante-natal depression with post natal depression - they are not the same.  One is depression during pregnancy, one is depression after pregnancy.  The symptoms may be similar, but the experiences and triggers may be very different.  In my case, being pregnant is what I found stressful.

 

My doctor says that crying in pregnancy is perfectly normal, but I think I’m depressed.  Can you help?

For a long time ante-natal depression has not been recognised but with recent media attention and research, medical professionals are rethinking their position and acknowledging that it does exist – particularly in light of the NICE guidelines coming out in 2007.  If you feel that you’re not getting the support you need from your doctor, have a chat with your midwife or consultant about how you’ve been feeling and please feel free to mention this website!  You could also take a look at my symptoms page to see if you can associate with other symptoms on that page or take a look at other websites that contain information on depression.  Please remember though, I can not give you any medical advice or opinion; you are encouraged to follow your own judgement and not rely on any information from this site to make a diagnoses about your condition.  I will always recommend that you speak with your GP, Midwife or other suitable medical professional.

 

Did you have counselling in time for your son being born?

No, there was an 8 – 10 week waiting list, and by the time I was officially diagnosed I was 32 weeks pregnant; this is a common situation that pregnant women with depression find themselves in.  However, since he was born I have allowed myself the time to understand why I was so frightened of the pregnancy and have learnt a lot about myself in the process. I received personal counselling for nearly a year after my son was born and have explored different areas which brought about the situation I found myself in, of being so happy to be pregnant but miserable and terrified at the same time.   For anyone who is suffering, or has suffered, from ante-natal depression I strongly feel that counselling is still worthwhile, even if it's not available until after the baby is born.

 

Did you take any medication during your pregnancy, to help with the depression?

No, in my case I was so relieved that I wasn’t going mad and that I had the support of my husband, that this was enough for me.  However, I get asked a lot about suitable anti-depressants that women can take in pregnancy and unfortunately I can not give any medical advice or opinion on this subject.  It’s really best to speak to a suitable medical professional about medication, if you have been diagnosed with ante-natal depression, so that they can advise you and offer you all the facts.

 

There is no Ante-Natal depression support group in my area.  What can I do?

Have a chat with your midwife to see if they know of any other pregnant mums in your area who may want to meet up periodically for support.  The biggest challenge may be finding somewhere local to hold the meetings and gaining funding for the group.  However, I am in the process of setting up a support group where I live, so if you’d like details of how I went about it, email me and I’ll send some information out to you.

 

How did you feel after your son was born?

Absolutely fine. The depression lifted the very moment he was born.  I cried inconsolably but out of happiness, to see his little face and that he’d made it.

 

Would you have another baby?

Now this answer is a little more complicated! Aside from the medical factors and the measures I had to take in order to fall pregnant with my son, I have to consider the affect that my pregnancy had on my husband and my daughter. It didn't just take a lot out of me, but a lot out of them too. It's not so much, would I have another baby, but would we?  In any event, my time is kept busy being a Mum, supporting the depression in pregnancy website, and working (to find out more about me and what I do, visit the Delphi Ellis website).  The truth is, for me there is no guarantee the ante-natal depression won't return if I fall pregnant again but at least this time I'm prepared for it.

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Remember everyone is different and my experience may not reflect someone else's.

If you would like to know more about my experience of depression in pregnancy or have any questions, then please email me, noting that I can not give any medical advice or opinion. 
I would love to hear from you.  In the meantime, thank you for visiting www.depression-in-pregnancy.org.uk and I wish you well.

 

Testimonial… “I remain very thankful to www.depression-in-pregnancy.org.uk for giving me hope and an explanation for my fears and for supporting me so well, where no other support was available.” Helen

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My Story of Ante-Natal Depression (Depression in Pregnancy)

Please note: You are not entitled to copy, modify or distribute this material in any way without the express permission from the author. Any unauthorised use, copying, modification or distribution of the material, or any attempt to alter or misuse content is expressly forbidden. For a pdf version of this document click here © Delphi Ellis All Rights Reserved

 

A bumpy ride

At the age of 20, after an uneventful first pregnancy - and a very stressful labour - I had a beautiful, healthy baby girl delivered by emergency caesarean. My second pregnancy however, several years later, ended in miscarriage and the relationship I was in, didn't survive either. Not long after I met my second husband, I was diagnosed with extensive endometriosis and pelvic inflammatory disease. The Doctor at the hospital told me to "think beyond having children now". I started an intensive treatment (injections in to my stomach every four weeks, for six months) which shut down my ovaries and caused a “quasi menopause”, meaning I had to take hormone replacement therapy tablets. I was just 27 years old. 

 

So we couldn't believe it when, just over a year later, I fell pregnant - my husband and I were absolutely overjoyed.  When I began to wash my hands excessively during the pregnancy, I didn't really think anything of it at first.  I was tearful and had suffered periods of sadness in my life but had no reason to think I may be suffering with depression during my pregnancy.  Crying in pregnancy was “perfectly normal” and how could I be depressed when I was so happy to be pregnant?  Besides, I'd never heard of “ante-natal depression”.

 

My behaviour changed

But soon after the initial excitement of discovering I was pregnant, my behaviour changed.  I wanted to stay in bed all the time. I didn't go out of the house and I didn't want to talk to anyone. Even with my husband and daughter, I was growing more and more irritable.  Once I passed the twelve week "watershed", I began to relax a little in to the pregnancy until at 18 weeks I had what appeared to be a show of blood.  Although, after examination, I was told this was nothing to worry about, the thought that the pregnancy could go wrong at any time was almost all I could think about. 

 

By the time I was about 32 weeks pregnant, I was a nervous wreck.  All I could think about was my pregnancy and I was making weekly (if not more frequent) visits to the ante-natal ward to hear the baby's heartbeat, although this rarely reassured me. I was eating just for the sake of it, and my weight increased from 11 stone to 13 stone in a matter of weeks.  I was washing my hands repeatedly to the point where the skin was so tight and dry, my hands would bleed.  I was becoming increasingly paranoid and anxious, I began to think that the house we had just moved in to was haunted and I felt like everything was conspiring against me.  I couldn't sleep even though I was exhausted and I was crying, inconsolably, for what seemed like hours at a time.

 

I had nothing to lose, if I was going mad anyway

My husband assumed it was my hormones and all part of pregnancy.  But I knew that wasn't it. Eventually, I decided to see my midwife and tell her everything. The way I saw it, I had nothing to lose if I was going mad anyway.  I sat in her office and explained what I had been feeling. I didn't care how crazy I sounded, I needed help and I felt I had to confide in someone for my sake and the baby's.

 

My midwife, Zoe, sat and listened until I'd finished talking. To my complete amazement she told me she thought she might know what I was experiencing.  She explained that some women, when pregnant, suffer from ante-natal depression - depression in pregnancy - and this can be for a number of different reasons.  In my case, it was probably an overwhelming fear that I could lose the baby, because of the difficult labour I had with my daughter, my previous miscarriage and the fact that I had fallen pregnant under difficult circumstances. (Some women suffer because they hadn't planned to get pregnant and, for example, weren't sure if they wanted to keep the baby). I was showing signs of Obsessive Compulsive Disorder (OCD) brought on by stress and had other symptoms which separated ante-natal depression from post-natal depression - although there were some similarities.  The good news was that, for many women, there is a good chance they will feel better once the baby is born.  She offered me counselling and regular check ups and I left her office that day feeling like I could breathe again.

 

After that, I had good days and bad days, but on the bad days I had to keep telling myself that I wasn't going mad and try to remain rational.  It wasn't easy and in the end my husband took time off work in the weeks leading up to the birth so that I didn't have to be on my own at home.  When my son was born, I cried hysterically - I was so happy and I could hardly believe he had made it.

I began to research ante-natal depression by looking it up on the Internet, but could find little information. I discovered a research project carried out by Dr. Jonathan Evans, a senior lecturer from Bristol University, in 2001 and also found a couple of old articles from the NCT (National Childbirth Trust) and BBC websites. 

 

Setting up Depression-in-Pregnancy.org.uk

My midwife said there wasn't enough known about ante-natal depression and asked me if I'd consider helping to set up a support group.  I agreed and, having spoken to Dr Evans, agreed to write an article about it too.   We all felt it was important to raise awareness of this illness and how important support can be. Even now, when I tell some people of my experience - even close friends - they say “if that had been me, I'd have told myself to snap out of it”. No one chooses to suffer from depression. It's an illness which requires acknowledgement, just like any other illness. If it hadn't been for my midwife taking the time to listen, I honestly don't know what may have happened. I just vividly remember how relieved I felt hearing her reassurance that I wasn't going crazy.

 

This is my story but everyone is different, every situation unique. I feel so much better now following the birth just as my midwife predicted, but my advice to anyone who recognises some of the "symptoms" as I have described them is to ask for help.  I doubt you'll regret it. © Delphi Ellis All Rights Reserved

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My campaign to raise awareness of Ante-Natal Depression

Since I found out about ante-natal depression I have worked hard to raise awareness of this illness.  This website has featured in magazines and newspapers including:

  • Prima Baby
  • Pregnancy & Birth
  • Pregnancy, Baby & You
  • Daily Express
  • Sunday Express
  • Daily Telegraph

I have also met with the Department of Health and written to MPs including Harriet Harman MP, Nadine Dorries MP and the Rt. Hon Rosie Winterton MP to detail that more needs to be done to educate GP’s on the subject of depression in general and particularly depression in pregnancy.  It is still being reported to me by many women that GPs are dismissing them (distressed pregnant women who are clearly showing symptoms of ante-natal depression) as hormonal and hysterical.  At best, this is sheer ignorance and at worst this is sexual discrimination.   Not only that, but women are making important decisions about their pregnancies based on their experiences with their GPs and healthcare providers because they feel they have no other choices available.  For various reasons GPs are unfortunately still not addressing this issue.  

 

I approached the Chief Executive of the local GPs’ association to ask him what is being done to train GPs on the subject of ante-natal depression, in light of the new NICE Guidelines on Ante-Natal and Post Natal Mental Health (AMPH).  I also offered him a free talk on ante-natal depression (which, to date, he has not taken up).  His reply was this:

 

"In short, I suspect very little education on depression during & after pregnancy.  For your information there have been drastic cuts in the budgets for deaneries for ongoing GP education and it has been disproportionately difficult to get anyone from the deanery involved in providing adequate ongoing education on any topic.

As a result, we, as an Local medical Committee (unusually now incorporated as a company limited by guarantee), have started to run such education without any sort of grant or government funding. we would be happy to consider running a course on this topic if you can direct us to appropriate lecturers or consultants with a specific interest in this topic. However, I should point out that in the current climate of healthcare being driven by government targets, sadly I would envisage that this (not being included in those targets!) is not likely to be high on GPs lists of priorities."

 

My intention is not to single out GPs as the problem, but to raise awareness that ante-natal depression does exist and like any other illness, needs to be diagnosed and treatment offered.  In general terms, my feeling is that more needs to be done at the GP level, by training many GPs and medical professionals to firstly recognise a person in distress and then provide relevant access to services (such as counselling, support groups, listening services) for those people*.  They should certainly not be 'passed off' as hysterical or hormonal, as is the case for many pregnant women who I have spoken to, or told that they can’t have the treatment they need because funding is an issue (particularly when many people, like myself, are offering their services free of charge).  Until then, I shall continue to campaign for fairer treatment of people with depression, including depression in pregnancy.  If you have any comments or queries about this, particularly if you’d like to share your experience, please don’t hesitate to get in touch.

 

With best wishes

Delphi Ellis MISMA

Website Founder

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Some interesting information about Stress, Depression and Anxiety in ‘general’ – (not specific to ante-natal depression):

 

·            In 2006, 31 million prescriptions were written for anti-depressants (Source: MIND).   This is despite the National Institute for Clinical Excellence issuing guidance in 2004 recommending that antidepressants should not be used as first-line therapy for mild to moderate depression.   In a survey carried out by MINTEL in the same year, 55% of people said that their GP did not offer therapy or counselling as a treatment option.  GPs say this is a funding issue; it seems the PCT pays for a counselling service if there is one (which therefore does not explain why some surgeries have a counselling service and others don’t).  The comments of the Chief Executive of the local GPs associations would suggest that it’s more a matter of meeting targets, and that depression in pregnancy particularly is not one of them.

·            Of the 130 cases of depression per 1,000 population of which only 80 consulted their GP, 49 were not recognised as depressed (see AMPH Guidelines, NICE 2007). 

·            In a recent letter to me, the Department of Health acknowledges that many patients with mental illness are (and I quote) 'often denied real choice in their treatments' and that there are 'inappropriate and limited service responses in primary care for people with depression and anxiety'.  The letter also refers to a two year old Labour Manifesto, which is apparently going to put more mental health workers in the field.  It does not specify however, any timelines for when this will take place and given the fact that the Manifesto is now two years old, one can only assume that is anyone's guess.

·            A Health & Safety Executive survey carried out in 2005/06 indicated that around 420,000 individuals in Britain believed that they were experiencing work-related stress at a level that was making them ill (in 2004/05). One in five people are stressed at workThe Samaritans have recently released figures which show that 13 million working days are lost to stress, depression and anxiety in the UK each year - a staggering financial loss of £3.7 billion to UK plc. According to the BBC Programme ‘the Happiness Formula’ (May 06), happiness levels in Britain are falling.  Compared to 52% of people saying they were very happy in 1957, only 36% would say the same today.  The fast pace of living in a modern world means that we are more anxious and worried, working longer hours, stuck in traffic more often and relationships are suffering.  (ISMA Stress news vol19, no1). 

·          Of the 232,000 homeless people in Britain today*, about 20% of those - about 50, 000 homeless people are made up of ex military personnel.  So far, since this Iraq war started over 2000 soldiers have been diagnosed with PTSD.  Of those 2000, it is anyone's guess how many will end up on the streets, or will end up taking their own lives.  Many military personnel who have been discharged from the army (on medical grounds) will have to go on an NHS waiting list to be seen (the military does not seem to provide “onward services” for discharged personnel), which in some cases can be up to 18 months - by then, it could be too late.  (During the Falklands War 255 men died as a direct result of hand to hand combat.  Since then, over 300 men have taken their own lives through suicide, because there was little or no help available to them, as sufferers of Post Traumatic Stress Disorder.) (*Source: Help Me Overcome)

·            In the Conservatives “Stand Up, Speak Up” document, the Conservatives seem to place Addiction as a higher priority than Mental Health (I’m not sure if Mental Health is on the agenda at all), despite Drug and Alcohol counselling organisations which already exist.  There is little – if anything - in the way of other national services for people suffering from depression and anxiety per sé.  As an example, in their document, the Conservatives quote "10 problem drug users per 1000 population" and want to put more money in to addiction, even though there are 130 people suffering from depression per 1000 according to NICE Guidelines (AMPH 2007).  This doesn't make sense to me and to date no one within Labour Government or Shadow Conservative Government has been able to explain it to me.  My feeling is that by addressing the subject of poor mental health in depression and anxiety, so many other areas such as sickness absence, employment, homelessness, alcohol consumption, crime and drug related issues will fall in to place.

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Helen’s Story

Helen has kindly donated her story for the Depression in Pregnancy website.  My personal thanks go to Helen for sharing her story for others to read.

 

Please note: You are not entitled to copy, modify, publish or distribute any material in any way without express permission from the Author. Any unauthorised use, copying, modification or distribution of the material, or any attempt to alter or misuse content is expressly forbidden.   For a pdf version of this document click here

 

I had my first child in December 1999 - it was a very stressful and long labour resulting in an emergency c-section as my son was in distress. All ended well but I was very scared to have another child. Eventually I got up the courage as I approached 40!

 

Having had a miscarriage in March 2004, I discovered I was pregnant again in January 2005 I was very nervous of a repeat. Thankfully all went well and I was very well and excited until 25 weeks. Suddenly I woke up one night breathing fast, sweating and feeling as if I was choking. I had a couple of other 'attacks' over a few nights - it escalated until I was scared to sleep.

 

I would lay awake worrying, I was sure I was going to die and baby too. I tried to explain my fears to others - but got the stock ' you should be excited' statements and little understanding. I got more and more tired and very low, terrified of the long nights, anxious and stressed. I didn't want to see people but forced myself to carry on for the sake of normality and my 5 year old son. I looked on the Internet and found The Depression in Pregnancy web site, read it and felt reassured I was not alone, it gave lots of positive information.

 

I exchanged a number of emails with Delphi (founder of www.depression-in-pregnancy.org.uk) and was very reassured to learn that I had no higher probability of pnd than any other new mothers - this was great news as I was very worried my fears would continue after the birth too. Delphi also arranged for a Support Advisor from the local Hospital to contact me, She came round to my home to discuss my fears and took me around the hospital - we especially visited the Operating Theatre where c-sections are performed - this particularly helped to address my concerns.

 

My doctor prescribed anti-depressants - I did not want to take these as the side effect leaflet scared me and arranged at my own expense (as my doctor had a 4 month waiting list) to see a counsellor - an ex mid wife, she helped me to express my fears and talking really helped me.  After the birth (another emergency c-section!) I was elated. My daughter is now 15 weeks old. I am very happy and the stresses have all melted away. I remain very thankfull to www.depression-in-pregnancy.org.uk for giving me hope and an explanation for my fears and supporting me so well where no other support was available. © www.Depression-In-Pregnancy.org.uk 2005 All Rights Reserved

 

 

 

 

Read a personal experience of ante-natal depression in my story (.pdf file)

For a copy of the Depression in Pregnancy leaflet, please email me. 

Read Dr Jonathan Evans' study (Bristol University, 2001) .pdf file

Read Professor Nicky Stanley's research and recommendations for healthcare professionals on Ante-Natal Depression

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